Ophthalmologists Specializing in Thyroid Eye Disease

Unlike other eye doctors, Thyroid Eye Disease Specialists have the right experience to provide the right care

Thyroid Eye Disease (TED) is a rare eye condition. That’s why you shouldn’t visit just any eye doctor, also called an ophthalmologist. You should see a TED Specialist. They have the experience to diagnose TED and provide you with the care you need.

While there are about 20,000 ophthalmologists in the US, most are not considered TED Specialists. Many TED Specialists have advanced training in one area of ophthalmology, such as surgical procedures.

Find a TED Specialist in your area

Ophthalmologists specializing in Thyroid Eye Disease

Below are the types of specialized ophthalmologists that you could see. While they may have different titles, what they have in common is experience treating TED.

Oculoplastic surgeon

A type of ophthalmologist with advanced surgical training. From writing prescriptions to surgery, oculoplastic surgeons generally have the most experience treating TED.

Watch an oculoplastic surgeon describe his role in caring for patients with TED

Video preview of Dr. Kikkawa, an oculoplastic surgeon, speaking about TED

Neuro-ophthalmologist

A type of ophthalmologist who focuses on how the eyes interact with the brain, nerves, and muscles. Some common conditions they treat are double vision, eyelid problems, and various types of vision loss; all of which can be symptoms of TED.

Strabismus specialist/surgeon

These ophthalmologists are experts in helping patients with crossed or misaligned eyes, called strabismus (struh-biz-muss), which is a common symptom of TED.

Retina/Vitreous specialist

A type of ophthalmologist who specializes in the retina, which is the part of the eye that takes in light and is responsible for central vision. They focus on treating vision issues, which are common symptoms of TED.

Cornea specialist

A type of ophthalmologist who specializes in the cornea, which is the clear, outer layer of the eye. They focus on treating damage to this part of the eye, which can be caused by retracted eyelids, or eyelids that can’t close properly. Retracted eyelids are a common symptom of TED.

What does a TED Specialist do?

TED Specialists will often:

  • Conduct a baseline eye exam to test your vision and make note of all your symptoms. If your eyes are bulging, your TED Specialist may use a tool called an exophthalmometer (ek-sof-thuhl-mom-ih-ter) to measure how far they are bulging
  • Conduct additional eye exams to see how your Thyroid Eye Disease is changing over time
  • Create a TED treatment plan, which could include:
  • Decide how often your Thyroid Eye Disease needs to be checked
  • If you also have a thyroid condition, like Graves’ disease, your TED Specialist may work with your endocrinologist on an overall treatment plan
    • They will want to make sure the medicine you need for TED does not affect the medicine you need for another condition.

Find a TED Specialist in your area

Questions? Call a Nurse Advocate.

Get answers about TED and help finding a TED Specialist.

Call 1-833-833-3930

Monday through Friday, 8AM to 8PM, ET.

Nurse Advocates do not provide individual patient care or medical advice. After speaking with a Nurse Advocate, be sure to talk to your doctor about your condition and treatment options.

Endocrinologists don’t usually treat Thyroid Eye Disease

If you have Thyroid Eye Disease (TED), you may have a separate thyroid condition, like Graves’ disease, for which you see an endocrinologist.

Endocrinologists specialize in glands and their hormones, like the thyroid and the important hormones your thyroid makes––not the eyes. Treatment for a thyroid condition won’t work for TED, and treatment for TED won’t work for a thyroid condition.

It’s important that you see a TED Specialist for TED, and an endocrinologist for any thyroid conditions.

What does an endocrinologist do?

Endocrinologists can:

  • Help treat Graves’ disease or other thyroid conditions if you’re diagnosed with one
  • Discuss the risk of developing TED, and the importance of early treatment
  • Work with your TED Specialist on an overall treatment plan
    • They will want to make sure the medicine you need for TED does not affect the medicine you need for another condition.

Hear from a real patient with Thyroid Eye Disease

Watch what a patient living with TED has to say about the importance of getting the right care.

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“For anyone who is suddenly having an onset of blurred vision, please don’t wait, don’t take chances, contact an ophthalmologist with Thyroid Eye Disease experience.” - Ron, real TED patient