Keep Track of Your Thyroid Eye Disease

There are 3 simple ways to track your Thyroid Eye Disease symptoms

The symptoms of Thyroid Eye Disease (TED) affect everyone differently. Some people may have only a few symptoms, while others may have a more severe case of TED. These symptoms can change or get worse over time, making it important that you observe and track any changes. The sooner you spot changes, the better your doctor can manage the disease.

Keeping track of how TED is affecting your day-to-day life and your state of mind is also important. Be sure to share these details with your doctor when you’re discussing your symptoms.

If TED is not treated, it can cause serious eye damage.

Use these resources to help you look for new or changing symptoms so you and your doctor can take action.

Thyroid Eye Disease tracking tools

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Take the TED Symptom Survey

Noticing changes in your symptoms is an important part of managing TED. Not sure what signs and symptoms to look for? Use the TED Symptom Survey to help you keep track and discuss them with your doctor.

Use the Symptom Survey

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Take selfie snapshots

Something as simple as a selfie each week can help keep track of how your Thyroid Eye Disease symptoms are changing. Your doctor can use these photos to check if the disease is getting worse.

Below are a few tips on how to take a good selfie:

  • Make sure your face is well lit
  • Look straight at the camera
  • Zoom in on your eyes, if possible

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Keep a journal

You can use the Symptom Survey and print your results or use your own journal to write down symptoms and track changes to your vision over time. You can also use your smartphone to record an audio journal of how your symptoms look or feel each day.

Be sure to write down or record how your symptoms are affecting your emotions and your everyday activities. These are important details for your doctor to know.

Be sure to observe and track your symptoms often. Picking a certain day of the week to check your symptoms for changes can help you make this a routine. If you notice any changes, let your doctor know right away.