Thyroid Eye Disease Symptoms and Signs

Thyroid Eye Disease (TED) is an ongoing condition that can get worse over time if left untreated. Treating TED early may help you avoid serious eye damage

Use the TED Symptom Simulator Tool below to learn about the symptoms of TED and how they progress, or read the list of symptoms below. Thyroid Eye Disease is sometimes also referred to as Graves’ Eye Disease.

Symptoms of Thyroid Eye Disease (TED)

The longer TED goes untreated, the more likely serious eye damage can occur.

That’s why it’s so important to be aware of Thyroid Eye Disease symptoms. The sooner you spot symptoms, like those listed below, the sooner you and your TED Specialist can come up with a treatment plan.

Listen To Your Eyes

Hear actual TED patients describe the importance of listening to what their eyes were telling them in this video:

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Why listen to your eyes? Transcript

ALLAN: What does it mean to listen to your eyes? You know, that's a good question.

BEATRIZ: My initial reaction to the concept of listen to your eyes was that you had to turn your ears inward.

NANCY: Listen to your eyes, they're trying to tell you something. And itchy is not usually the word, it's usually red and burning and gritty. And those are not normal things, but we try to normalize things.

ALLAN: I had a difficult time initially. I woke up one morning and my eyes were starting to go double. I experienced double vision at the periphery of my eyes. So, the symptoms were right there, they were very obvious.

BEATRIZ: What I've learned to listen to, and it took a long time, is the fact that now it's something is going on that's muscular or that's in some way related to my skull or where my eyes live. So, that was a way I had to internalize it and say, okay, wait, something deeper is going on.

NANCY: If you are watching this and your eyes are basically screaming at you, they burn, they're tearing, they feel like you've been to the ocean and the sand is in them, none of that is normal and you need to listen to them and you need to really hear them.

END

It’s important to remember that TED affects everyone differently

While some symptoms may get better over time, others may not. It’s even possible for certain triggers, such as smoking or stress, to cause your TED to flare.

According to specialists, being treated as early as possible is ideal, but treatment may still help if you’ve had TED for years.

Learn more about what happens during TED

If you have a thyroid condition (like Graves’ disease) and eye symptoms, talk to a TED Specialist.

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Thyroid Eye Disease Symptoms and Signs

Thyroid Eye Disease (TED) is an ongoing condition that can get worse over time if left untreated. Treating TED early may help you avoid serious eye damage

The TED Symptom Survey can help you identify possible symptoms of TED so you can share them with your doctor.

Symptoms of Thyroid Eye Disease (TED)

Dry, gritty eyes

The feeling of something stuck in your eye

Watery, teary eyes

Red or bloodshot eyes

Eye pain and eye pressure

Light sensitivity

Blurry vision

Double vision

Bulging eyes

Eyelid retraction

Swollen, puffy eyelids

Eye misalignment

Color vision loss

Vision loss

Itchy Eyes

TED is a rare condition, and not all doctors are used to treating it. Make sure you see a doctor who is.

Listen To Your Eyes

Why listen to your eyes? Transcript

It’s important to remember that TED affects everyone differently

Want to learn more?

TED is a rare condition, and not all doctors are used to treating it.
Make sure you see a doctor who is.