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Thyroid Eye Disease and Vision Support Groups
Taking on Thyroid Eye Disease, together
If you have Thyroid Eye Disease (TED) and/or a thyroid condition, like Graves’ disease, you aren’t alone. Hearing how others cope with these conditions can help you learn to better manage them, or just help you feel better. Here are some organizations and communities dedicated to helping those with TED, thyroid conditions, Graves’ disease, and vision issues connect with each other and get support.
Click the circles below to find support groups that may be helpful for you:
Thyroid Eye Disease support resources
Listen To Your Eyes Facebook Community (sponsored by Horizon Therapeutics)
The Listen to Your Eyes Facebook page is a community resource for people living with or caring for someone with TED. This page offers resources, tips, support, and more. You’re not alone living with TED. Listen to Your Eyes is a place where you can come to learn about TED and be inspired by others who are navigating their own TED journeys as patients and caregivers.
oneGRAVESvoice
oneGRAVESvoice is an online educational and social platform for the Graves’ disease and Thyroid Eye Disease (TED) communities. People living with or impacted by TED can:
- Learn about TED-related topics in a variety of ways (news, articles, videos)
- Connect with other patients and community members
- Ask questions about symptoms, diagnosis, and treatments
The American Academy of Ophthalmology (AAO)
The AAO is the world’s largest association of eye physicians and surgeons. A global community of 32,000 medical doctors with a mission to protect sight and empower lives by serving as advocates for patients and the public, leading ophthalmic education, and advancing the profession of ophthalmology.
Thyroid Eye Disease Charitable Trust (TEDct)
The Thyroid Eye Disease Charitable Trust (TEDct) provides information, care and support to those affected by Thyroid Eye Disease (TED). Founded in 1990, the TEDct aims not only to create greater awareness of Thyroid Eye Disease, but also to inform and support those affected by the disease. TEDct provides the opportunity for those affected by TED to receive support and medical information.
Thyroid conditions support resources
Graves’ Disease & Thyroid Foundation
Established in 1990 as the National Graves’ Disease Foundation, the Graves’ Disease & Thyroid Foundation provides education and support for patients, family members, caregivers, friends, and healthcare professionals.
SER 4 Thyroid Group
The SER 4 Thyroid Group is a group of advocates who provide support, education, and resources for patients and family members affected by Graves’ disease, Thyroid Eye Disease, and hypothyroidism.
oneGRAVESvoice
oneGRAVESvoice is an online educational resource and social forum for the Graves’ disease and Thyroid Eye Disease (TED) communities. People with Graves’ disease can:
- Learn more about TED and Graves’ disease
- Connect and share with others having a similar experience
- Find healthcare providers
- Access articles, videos, and other resources related to TED and Graves’ disease
Thyroid Awareness
ThyroidAwareness.com is a comprehensive site that explains everything about the thyroid and thyroid diseases. A helpful resource developed by the American Association of Clinical Endocrinologists.
American Autoimmune Related Diseases Association (AARDA)
For more than 25 years, AARDA has been helping those affected by autoimmune diseases. AARDA helps patients and caregivers with resources in education, women-focused information, diagnosis tips, coping tools, and support groups.
Thyroid Federation International
Thyroid Federation International is a global network of patient-focused thyroid disorder organizations. The goal of the federation is to improve the lives of those affected by thyroid disorders around the world.
American Thyroid Association® (ATA)
ATA is a professional medical association dedicated to transforming thyroid care through clinical excellence, education, scientific discovery, and advocacy in a collaborative community. The ATA patient resource pages provide up-to-date information for thyroid patients, their families, and other interested public communities.
Thyroid Change™
Thyroid Change is a collaborative network and health information website created to unite an international community of medical professionals and patients under the same innovative vision: personalizing thyroid care for optimal wellness.
The American Association of Clinical Endocrinologists (AACE)
The American Association of Clinical Endocrinologists (AACE) is a professional community of physicians specializing in endocrinology, diabetes, and metabolism, committed to enhancing the ability of its members to provide the highest quality of patient care.
Graves’ disease support resources
Graves’ Disease & Thyroid Foundation
Established in 1990 as the National Graves’ Disease Foundation, the Graves’ Disease & Thyroid Foundation provides education and support for patients, family members, caregivers, friends, and healthcare professionals.
oneGRAVESvoice
oneGRAVESvoice is an online educational resource and social forum for the Graves’ disease and Thyroid Eye Disease (TED) communities. People with Graves’ disease can:
- Learn more about TED and Graves’ disease
- Connect and share with others having a similar experience
- Find healthcare providers
- Access articles, videos, and other resources related to TED and Graves’ disease
The American Association of Clinical Endocrinologists (AACE)
The American Association of Clinical Endocrinologists (AACE) is a professional community of physicians specializing in endocrinology, diabetes, and metabolism, committed to enhancing the ability of its members to provide the highest quality of patient care. The AACE’s Up To Here campaign provides you with resources to keep you informed and proactive about your thyroid health.
The Hormone Health Network®
The Hormone Health Network® is the nation’s endocrine patient education resource. They are committed to helping patients have more informed discussions with their doctors about hormone health, disease, and treatment.
American Autoimmune Related Diseases Association (AARDA)
For more than 25 years, AARDA has been helping those affected by autoimmune diseases. AARDA helps patients and caregivers with resources in education, women-focused information, diagnosis tips, coping tools, and support groups.
Vision support resources
Prevent Blindness®
Founded in 1908, Prevent Blindness® has become the nation’s leading volunteer eye health and safety organization dedicated to fighting blindness and saving sight. Focused on promoting a continuum of vision care, Prevent Blindness offers resources to those affected by vision issues.
American Foundation® for the Blind (AFB)
With nearly 100 years of service, AFB is a public policy and research center for the advancement of accessibility and disability-inclusion causes. The AFB advocates for better policies that promote equality and opportunity for people who are blind or visually impaired to create a culture of inclusion at work, at school, and in communities.
National Federation of the Blind (NFB)
NFB is the oldest and largest nationwide organization for Americans living with blindness. The NFB coordinates many programs, services, and resources to provide information and support to children and adults living with blindness. They also have a comprehensive network of programs and services for the visually impaired community.
The American Academy of Ophthalmology (AAO)
The AAO is the world’s largest association of eye physicians and surgeons. A global community of 32,000 medical doctors, with a mission to protect sight and empower lives by serving as advocates for patients and the public, leading ophthalmic education, and advancing the profession of ophthalmology.
VisionAware™
VisionAware™ helps adults who are losing their sight continue to live full and independent lives by providing timely information, step-by-step daily living techniques, a directory of national and local services, and a supportive online community.
Lighthouse Guild
Lighthouse Guild is dedicated to addressing and preventing vision loss. The Lighthouse Guild helps coordinate care for eye health, vision rehabilitation, behavioral health, and related services to reduce the burden of living with vision loss.
The National Alliance for Eye and Vision Research (NAEVR)
NAEVR is an advocacy organization consisting of a coalition of 55 professional, patient, consumer and industry organizations involved in eye and vision research. The goal of NAEVR is to achieve the best eye and vision care for all Americans through advocacy and public education for eye and vision research.
Job support resources
The Job Accommodation Network (JAN)
The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. Their resources include fact sheets on job accommodations available for those affected with Graves’ disease and low vision.
Learn more about accommodations for people with Graves’ disease