Living With Thyroid Eye Disease

Thyroid Eye Disease affects more than your eyes. It can affect your daily life.

The true impact of Active Thyroid Eye Disease (TED) goes well beyond your eye health. It can also have a tremendous impact on nearly all aspects of life, including your mental health. While these changes may not always be visible, they’re just as real and shouldn’t be overlooked when talking to your doctor. Below are changes to daily life that you should keep track of.

Impact of TED on daily life

Physical impact of Thyroid Eye Disease Physical impact of Thyroid Eye Disease

Physical impact

Pain and changes to your vision or how easily you can move your eyes can limit how well you do certain tasks. These can include:

  • Difficulty driving
  • Depending on others for care
  • Having to miss work because of symptoms
Emotional impact of Thyroid Eye Disease Emotional impact of Thyroid Eye Disease

Emotional impact

Dealing with TED be frustrating and you may feel embarrassed about how it changes the way you look. It's not uncommon to experience:

  • Depressive feelings
  • Anxiety

 

Social impact of Thyroid Eye Disease Social impact of Thyroid Eye Disease

Social impact

How you live with TED can change your social life and your relationships. For example, you may:

  • Avoid other people and social events
  • Have a hard time making normal facial expressions
  • Have problems holding face-to-face conversations
Self Esteem and Thyroid Eye Disease Self Esteem and Thyroid Eye Disease

Impact to sense of self

TED can change your appearance and this can have an impact on your emotions. As a result, you may feel:

  • Self conscious
  • A loss of self-worth
  • Like you don't recognize yourself in the mirror
  • Disconnected from friends, family, and hobbies

Not all symptoms and signs of Active TED are visible. Be open and honest with your doctor about how the condition affects your daily life.

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Have Graves’ disease and are experiencing eye symptoms? Find a TED specialist near you and request a baseline eye exam.