Thyroid Eye Disease and Vision Support Groups

Taking on Thyroid Eye Disease, together

If you have Thyroid Eye Disease (TED), know you aren’t alone. Hearing how others cope with TED can be help you learn to manage it or just help you feel better.

Here are some organizations and communities dedicated to helping those with TED and vision problems connect with each other and get support:

Listen to Your Eyes Facebook page logo Listen to Your Eyes Facebook page logo

Listen to Your Eyes is a community resource for people living with or caring for someone with TED. This page offers resources, tips, support, and more. You're not alone living with TED. Listen to Your Eyes is a place where you can come to learn about TED and be inspired by others who are navigating their own TED journeys as patients and caregivers.

Learn more >


Graves Disease and Thyroid Foundation logo Graves Disease and Thyroid Foundation logo

Established in 1990 as the National Graves’ Disease Foundation, the Graves’ Disease & Thyroid Foundation provides education and support for patients, family members, caregivers, friends, and healthcare professionals.

Learn more >


One Graves' Voice logo One Graves' Voice logo

oneGRAVESvoice is an online educational resource and social forum for the Graves’ disease and Thyroid Eye Disease (TED) communities. People living with or impacted by TED can:

  • Access and learn about TED-related topics through a variety of sources (news, articles, and videos)
  • Find support by connecting with other patients and community members via a social wall
  • Ask questions about symptoms, diagnosis, and treatments

The TED Educator page provides relevant articles and videos to help patients understand and manage TED. Specifically:

  • Clinical presentation: an overview of the signs and symptoms and what to look for in diagnosing TED
    Learn more >
  • Getting a diagnosis: resources to explain the process of a TED diagnosis and what it means for you and your doctor
    Learn more >
  • Associated diagnosis: examples of how TED is related to autoimmune deficiencies such as Graves’ disease
    Learn more >
  • Post-diagnosis resources: provides patients with information to help manage a diagnosis of TED, including physicians, centers of excellence, and treatments
    Learn more >

The SER 4 Thyroid Group logo The SER 4 Thyroid Group logo

The SER 4 Thyroid Group is a group of advocates who provide support, education, and resources for patients and family members affected by Graves’ disease, thyroid eye disease, and hypothyroidism.

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American Association of Clinical Endocrinologists logo American Association of Clinical Endocrinologists logo

The American Association of Clinical Endocrinologists (AACE) is a professional community of physicians specializing in endocrinology, diabetes, and metabolism committed to enhancing the ability of its members to provide the highest quality of patient care. The AACE’s Up To Here campaign provides you with resources to keep you informed and proactive about your thyroid health.

Learn more >


Thyroid Federation International logo Thyroid Federation International logo

Thyroid Federation International is a global network of patient-focused thyroid disorder organizations. The goal of the federation is to improve the lives of those affected by thyroid disorders around the world.

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American Academy of Ophthalmology logo American Academy of Ophthalmology logo

The American Academy of Ophthalmology is the world’s largest association of eye physicians and surgeons. A global community of 32,000 medical doctors, with a mission to protect sight and empower lives by serving as an advocate for patients and the public, leading ophthalmic education, and advancing the profession of ophthalmology.

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The American Thyroid Association logo  The American Thyroid Association logo

The American Thyroid Association® (ATA) is a professional medical association dedicated to transforming thyroid care through clinical excellence, education, scientific discovery, and advocacy in a collaborative community. The ATA patient resource pages provide up-to-date information for thyroid patients, their families, and other interested public communities.

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The American Autoimmune Related Diseases Association-logo The American Autoimmune Related Diseases Association-logo

The American Autoimmune Related Diseases Association (AARDA) is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through fostering and facilitating collaboration in the areas of education, public awareness, research, and patient services in an effective, ethical, and efficient manner.

Learn more >


American Foundation for the Blind logo American Foundation for the Blind logo

With nearly 100 years of service, American Foundation® for the Blind (AFB) is a public policy and research center for the advancement of accessibility and disability-inclusion causes. The AFB advocates for better policies that promote equality and opportunity for people who are blind or visually impaired to create a culture of inclusion at work, at school, and in communities.

Learn more >


The Hormone Health Network logo The Hormone Health Network logo

The Hormone Health Network® is the nation’s endocrine patient education resource. They are committed to helping patients have more informed discussions with their doctors about hormone health, disease, and treatment.

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The Job Accommodation Network logo The Job Accommodation Network logo

The Job Accommodation Network (JAN) is the leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. Their resources include fact sheets on job accommodations available for those affected with Graves’ disease and low vision.

Learn more about accommodations for people with low vision >

Learn more about accommodations for people with Graves’ disease >


Lighthouse Guild logo Lighthouse Guild logo

Lighthouse Guild is dedicated to addressing and preventing vision loss. The Lighthouse Guild helps coordinate care for eye health, vision rehabilitation, behavioral health, and related services to reduce the burden of living with vision loss.

Learn more >


The National Alliance for Eye and Vision Repair logo The National Alliance for Eye and Vision Repair logo

The National Alliance for Eye and Vision Research (NAEVR) is an advocacy organization consisting of a coalition of 55 professional, patient and consumer, and industry organizations involved in eye and vision research. The goal of NAEVR is to achieve the best eye and vision care for all Americans through advocacy and public education for eye and vision research.

Learn more >


National Federation for the Blind logo National Federation for the Blind logo

National Federation of the Blind (NFB) is the oldest and largest nationwide organization for Americans with blindness. The NFB coordinates many programs, services, and resources to provide information and support to children and adults with blindness. They also have a comprehensive network of programs and services for the visually impaired community.

Learn more >


Prevent Blindness logo Prevent Blindness logo

Founded in 1908, Prevent Blindness® has become the nation's leading volunteer eye health and safety organization dedicated to fighting blindness and saving sight. Focused on promoting a continuum of vision care, Prevent Blindness offers resources to those affected by vision issues.

Learn more >


Thyroid Change logo Thyroid Change logo

Thyroid Change™ is a collaborative network and health information website created to unite an international community of medical professionals and patients under the same innovative vision: personalizing thyroid care for optimal wellness.

Learn more >


VisionAware logo VisionAware logo

VisionAware™ helps adults who are losing their sight continue to live full and independent lives by providing timely information, step-by-step daily living techniques, a directory of national and local services, and a supportive online community.

Learn more >

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Have Graves’ disease and are experiencing eye symptoms? Find a TED specialist near you and request a baseline eye exam.